- Enforcing jurisdiction
- Germany · Geography does not establish applicable law.
- Confirmed applicable legislation
- Privacy topics
Hamburgische Krebsregister (Hamburg Cancer Registry) – Court Ruling (Germany, 2022)
Privacy enforcement record
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The Hamburg Cancer Registry was involved in a legal dispute over data processing related to cancer patients. A patient requested access to her data, which was properly handled according to the law. This case emphasizes the importance of transparency and patient rights in health data management.
What happened
A patient requested access to her personal data held by the Hamburg Cancer Registry.
Who was affected
A cancer patient diagnosed in 2019 who sought information about her data.
What the authority found
The court confirmed that the patient received a complete overview of her stored data, complying with legal requirements.
Why this matters
This case reinforces the need for health organizations to respect patient rights regarding data access. It sets a precedent for how health data should be managed and shared.
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Source checks
Linked-source text retrieved.
Automated check recorded — 21 March 2026.
Processing notes: national law identified.
Retrieved text may be a secondary summary or an announcement. These automated statuses do not establish that the original decision was read or that the record received an independent legal review. How we check sources
The parties are in dispute about Hamburg Cancer Registry data processing and data transfers procedures. The data subject was diagnosed with breast cancer in 2019 and is a resident of the federal city-state of Hamburg. Treating physicians are legally obliged to transfer personal data of their cancer patients to the Cancer Registry. The Hamburg Cancer Registry (HKR) is an independent department of the regional Authority for Science, Research, Equality and Districts. Task of the registry is to identify cancers to be recorded in relation to the population, i.e. occurrence and frequency of diseases and their distribution according to age, sex and place of residence. Transferred data contains name, health insurance number, residence, data of birth, sex, sometimes personal habits (e.g. smoker) and health related data like diagnose, start, length and result of treatment. The data is processed in a confidential (physical) area within the HKR. Moreover, to pseudonymise the data, a set of hash-based control numbers will be automatically generated for every data set. Only the employees of the confidential area have access to the unencrypted personal data. Health related data sets will be shared with other cancer registers and cancer combating organizations on the federal level. The regional law applied here is the Hamburg Cancer Registry Act (HmbKrebsRG). The concerned data subject received a data protection declaration of consent and privacy information with her treatment contract from the hospital. The data subject gave consent to all data transfers at the end of April 2019. In March 2020, the data subject received a request from the University of Lübeck to take part in a cancer-study. According to the letter, contact was made, because the data subject was registered in the HKR. Subsequently, the data subject submitted a right to access request to the HKR. According to the HKR, the data subject received a complete overview of the stored data. This overview contained a
Outcome
Court Ruling
A ruling by a national court on a data-protection matter.
Related Cases (0)
No other cases found for Hamburgische Krebsregister (Hamburg Cancer Registry) in DE
This is the only recorded case for this entity in this jurisdiction.
Details
Ruling Date
28 July 2022
Authority
DPA VGHamburg
About this data
Cite as: Cookie Fines. Hamburgische Krebsregister (Hamburg Cancer Registry) - Germany (2022). Retrieved from cookiefines.eu
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